Tuesday, June 21, 2011

This I Believe.

I have a fear of flying.

I can't tell you exactly where it came from. In my first memory of flying I was able to stand comfortably in front of the seat and my mom was still taller than me even though she was sitting down. I remember being most upset about the fact that my brother wouldn't let me look out the window, which was Not Fair. Sometime between that episode and the few flights I took as a teenager, and then the more flights I took as an adult, fear set in.

What used to happen was that if I had to take multiple flights in a short period of time (say, a year), by the time I got to the third or so flight it was old hat and my fear of flying had melted away. This changed just last fall when I went to Portland. On the way back we hit some mad turbulence. At one point the plane was in a freefall for probably two or three seconds. It felt much longer, of course. But it was definitely long enough for full screams to have been uttered throughout the plan before we "landed" back on normal air. The two guys next to me were military men; they started whooping it up like we were on a rollercoaster, toasting the plane with their drinks as they laughed. Then the guy next to me looked at me, sobered up, and said, "Ma'am, are you all right?" I said I was but I wasn't. I was in a dead panic. It didn't go away and even numerous flights later, it still didn't go away.

What happens now is that weeks before my flight takes off I have a gnawing anxiety eating at me every day while I imagine the fear that I'll feel, the panicked state I'll be in, when that turbulence hits. Even if it's not bad, it'll still scare the bejeezus out of me. And I know this. And I anticipate this. So I have anxiety for weeks leading up to the flight and anxiety all through the flight and blind panic when there's turbulence.

I meditate. I pray. I make myself right with world. I weigh my past actions against my future plans and decide whether I'm okay with the concept of dying today. I take deep breaths. I tell myself everything will be just fine. These things help sometimes.

I flew to Chicago last week. At some point in the midst of my pre-flight-weeks-of-anxiety it occurred to me to wonder where all this fear came from. Where all this anxiety came from. I used to be a super-relaxed person. Go with the flow, calm in the face of adversity, come what may sort of individual. Where did that go and why was it replaced with this? Not just the fear of flying, but all the anxiety I ever get.

Mind you, this was a passing thought while I walked to work. I got as far as this before my thoughts turned elsewhere: When I was younger, part of my relaxed state was my acceptance that I had no power in my life. When I grew older and developed power over my life, I hit the opposite extreme in which I have near-constant anxiety in my drive to have say over the things that affect me. I went to the other end of the pendulum.

On the way to Chicago, it was an overnight flight. I took a sleeping pill. I took some Jack Daniels. I took some light reading. I took my husband's hand when the flight got bumpy. I made it through just fine.

Chicago was awesome.

On the flight back, during the day, we were trapped in two cramped seats behind two seats that couldn't go back in the upright position. The man in front of me was very large and so whenever he moved, his seat moved from approximately 16 inches in front of my face to approximately 10 inches in front of my face (slight exaggeration). I prayed and meditated and read my light reading. When the turbulence hit, it wasn't too bad. But then the guy ahead of me moved and the seat hit my knee and it startled me and in that moment of startle the turbulence got much worse. It still wasn't bad, but with the startle I was primed, and so flew into a full-fledged panic, whispering frantically "it'sokayit'sokayit'sokayit'sokay." Michael jumped into action, holding my hand, kissing my face, soothing me and calming me.

It was not okay at all.

After calming down a bit, I decided I'd had enough of this. It was time to get to the bottom of it all. Time to make this fear Go Away. So I went into a purposeful meditation. I don't know if there's a name for this state, but I'm calling it that. Meditative state-- calm, inward-- but with purpose. My point to begin with was to define for myself what it is I believe in, especially figuring out this whole Fate/Chance thing.

Here's what I came up with:

I believe that everything that happens in this universe happens in reaction to something else. Many other things. I believe that, in this way, someone much smarter than me could figure out everything that ever has, ever could, or ever will happen. But it would pretty much take an omniscient being to do this. People? No way. It's way bigger than us. So much bigger than us that the pieces of happenings that we see look to us like Chance only.

I believe that Chance is the sum total of the happenings of the universe-- occurring in a pattern, maybe along some plan, but way too big for us to see. Chance is the stuff in this universal web that we don't get to understand with our puny human brains/perspectives.

I believe that Fate is when Chance happens at a small enough scale for us to glimpse some of the pattern. It's small enough for us people to look over a line of events and see how point A got to point B and what that means for us. Fate is the human-understanding-sized pieces of Chance. Chance and Fate are exactly the same thing. Sometimes the pattern moves on our behalf. Sometimes it moves actively against our behalves. Sometimes (most times) it has absolutely nothing to do with us as individuals or us as species. But when we see it, when we understand it, then we know Fate.

I believe that people have power within Fate/Chance. True, the choices we make are never without cause. Everything we do is in reaction to other things that have been done, in the way our emotions compel us, in the way that our brains justify us, in the way that our autonomic systems evolved to conduct us. Our power is one small piece of Fate/Chance. Our actions, the oceans' currents, the life cycle of a flower, the creation and destruction of stars, the submolecular movement of atoms-- it all works within this pattern. Our words and deeds and actions have power to affect the small scales, the human scales, of Fate/Chance. We can help or harm others. We can help or harm life. We can affect things. And if our choices are part of the huge pattern, well, the pattern is still too large for us to divine. This is Free Will.

Right around this revelation, I remembered my earlier thought that my fear comes from my lifetime pendulum swing of powerlessness to power.

When I was young, I had no power. When life hurt me it was due to Chance (those things that have nothing to do with me but happen to me regardless) or to human power (those people who hurt me with the power they held over me).

When I grew, I developed my own power, and I used it to improve my life. Growing up was a heady thing for me. I became powerful. I could prevent bad things from happening. I could make good things happen. I could leave bad people behind. I could do things.

So assuming that I took this power and used it as often and as much as I could, one could see how I might become something of a tenacious, list-making, type A control freak. An effective one, I might add. I really like getting things done.

And assuming that I realized that growing up was heady and that I enjoyed this power, one could see how I might be just fine with that.

But assuming that I never actually took the time to consciously think about this gained power beyond "I like it", one could see how I might implicitly conflate power with control.

And here's what I believe: I believe that we as individuals, as groups, as a species, have the power to affect ourselves, each other, the world, and Fate/Chance. We have the power to affect these things. We are not in control of these things.

In all of my time as a powerful woman adult, I have never once been in control of anything. I just never realized it. Without considering what these things meant, I operated as though having power to affect my life was the same as being able to control it. And so when placed in situations in which I have no control (realize I have no control), such as flying in planes that hit bad turbulence, I feel powerless. I feel negated.

Only, I never had control. I could get hit by a bus. My job or my school could be entirely defunded no matter how well I do. A meteor could strike Earth; Yosemite could erupt; my plane could crash. I can't even control my body. I can walk where I want to go, but I get injured and then I can't just walk. I can eat well and exercise, but I can still develop a tumor. I might have had a cancer-causing genetic condition. I can't control these things. I have never been in control.

On the plane from Chicago, in my fear and my purposeful meditation, I thought to myself,

"I will not lose my power if I let go of my illusions. I will not lose my power if I let go of my illusions."

Many times. A mantra. Until it calmed me. Until I believed it. Then I told myself what my illusions were.

"Power is not control. I have power. I have no control. I will not lose my power if I let go of my illusions."

I thought about the things I "have" to do-- job and school and caring for others and making the world a better place.

"I have power. I have responsibilities. But I do not have control. I will not lose my power if I let go of my illusions."

Another mantra. And again I repeated it over and over, trying to settle my fear. I don't have power over the plane, over the flight, over the air, over the pilot, over a lack of meteorites falling from the sky and slicing through the engines. But I am not powerless from this lack of control. Because while I had power on the ground, in my daily life, I never had control. Control was only an illusion. Feeling out-of-control on the plane was only an illusion. Because I had never had control.

And then my heart leapt. And I understood where I was going in this purposeful meditation.

"I have power. But I do not have control. And for this I am free."

Realizing I am not in control means that I can stop being scared about not being in control. Realizing that I have power means that I can stop being scared, because I always have this power. Sometimes I am better able to use it, but it never leaves me.

I wrote in my notebook, "I've come a long way in three hours."

The last six hours of the flight were much easier. Even the turbulence. Even the landing.

My next step will be to internalize these revelations. I've had years and years of internalizing a fear of losing control. Now it's time to internalize the disconnect between power and control.

***

My surgery is on Friday. After completing paperwork and getting preparation instructions yesterday, I was kind of bummed and somber with the idea of surgery. But this morning I was happy again, because hey. I get to keep my boobs. This surgery is the good outcome and it'll all be over soon. This is another exercise in my lack of control. But I have power. I have the power of blind optimism and denial if I want it, and happiness as I look forward to the things that come next. This is going to be a great summer after all.

Saturday, June 4, 2011

And it's good news!

I'm negative for the BRCA1 mutation!

I simply cannot describe the giddy relief that I am feeling at this news. I honestly didn't expect it. It seemed too much of a coincidence. Eff yeah for coincidences!!!

Michael helped me stay calm up until the appointment when we found out. All day Thursday he emailed me pictures of cute animals, forcing in little pockets of happiness into my day. On Friday morning I went to volunteer at the Humane Society and he came with me, helped me clean out the bunny and guinea pig cages, helped me pet small furry animals and take care of puppies. It was storming, thunder and lightning, and sometimes the puppies around us would freak out a bit so we'd go and reassure them. Animals are good for the soul. They made the morning pass easily.

When we walked into the genetics counselor's office, she said, "Well, I have some good news for you." And I thought, "Good news about what?" because it didn't seem possible that good news could be related to this. But it was good news related to this.

As we left, I admitted to Michael that I hadn't expected this outcome, that I thought it would be too much of a coincidence. He admitted that he had thought the same thing. We hadn't told each other, because sometimes you just have to pretend there's hope, even when there's not.

Crazy happy joy.

It was amazing when I got home. Life had opened up before me. The paralysis left me immediately. I thought, 'I need to make plans. I need to make lists. So much to do!'

I keep a note pad on my desk, and every day I write in 3 to 4 things to accomplish today. Sometimes I write in more longterm tasks. But I always have a list of things to do. Six weeks ago, the lists stopped. I still did things, sometimes, but mostly I did nothing because there was no way to know what to plan for. I was stunted.

Within hours of getting home, the list was back. Tasks. Plans. Goals. Things to do. Today. Next week. This summer. This year. I took a moment to think to myself (this time my thoughts were spoken in Gina's voice), "Kati, only you would celebrate this by working on grad school things." But it was wonderful. I had a sense of purpose again. I thought, "I'm back."

In the afterglow of this huge relief, I feel something like gratitude. Something like gratitude squared. Something like an all-encompassing thankfulness for my life and everything about it. Because these are some things I learned this month:

* I have an amazing support network in my life. Seriously, so many people stepped up to the plate, including people I would never have expected to feel responsible for stepping up. People really took care of my spiritual and emotional needs through this. I was on probably two dozen prayer lists, not to mention people praying singly. People did nice things for me, said kind words to me, listened to me fret and cried with me and drank with me and distracted me and really, really took care of me. My friends and family are amazing. I get why people send casseroles and flowers and cards that say Thinking Of You. This is why.

* I have the best husband in the world. Which I already knew. But he has been here with me, for me, daily, constantly, throughout this. I couldn't have asked for more. As always, Michael has taken care of me. We got through this together. Once again, the importance of Being There.

* I needed a break from school. Taking a few weeks off from doing things, especially while under the belief that it was the first few weeks of a year off that I didn't want, was exactly what I needed. And I never would have taken a break except for this. But now I have a reprieve from a forced hiatus. Now I get to come back, just like I wanted to come back. I felt burnt out a lot this past semester. This past year. But now I am ready to go. I will do all the things. And I will graduate next year. And it will be amazing.

* And finally, work hard. But play hard. Being with people is very important. Getting my stuff done is also important. Both of these things are important. I'm gonna do these things.

I know in the future, and possibly soon, the stress and the daily tediums and worries and problems will take back over. But for now, I have such gratitude. Right now, I feel full of life. And if there is anything I've learned this past month, it's to take what you got and run with it. Because you just don't know what tomorrow holds.

Is that trite? Who cares. :D

Thursday, June 2, 2011

Waiting Game, cont'd.

I find out tomorrow.

Seven days ago I was told I'd know in 7-14 days. Yesterday I was told Friday. On Friday it will be certain. The waiting will be over. I'll know.

Yesterday morning, when I found out it would be Friday, I thought to myself, "Now how am I supposed to make it through two more days?" It was like the waiting game I've been playing this past month was ratcheted up a notch. Waiting squared. I was at work. I thought, "I can't possibly think. I can't possibly do my daily life." All I could think about was getting the answers, about getting the surgeries, about the 'what ifs'.

I didn't sleep too well last night. I was sleeping fine until three days ago. Then I started taking valerian root or kava to help cool my anxieties. Last night I stayed up late watching silly movies. I decided, at this point, I just need to make the hours pass.

Yesterday morning, after I found out it would be Friday and I thought to myself "Now how am I suppose to make it through two more days," I emailed Michael and told him we're going out to eat. And he said that's just fine. An hour later, my friend Lauren was in my office, returning my hats I'd left in her car. She gave me a card to read later and we talked about social justice and history and white privilege and Civil Rights and the American military presence in the Marshall Islands. It was great and it helped me feel normal. It helped the time pass with my mind on other things.

After she left I opened the card. Lauren, Rachel, Gina, Katie, Sherri, and Charlene chipped in to buy Michael and me a night out... gift certificate to a really awesome nice restaurant called Town. They serve locally grown foods, really nice place. Amazingly tasty. Plus they bought me a massage. The card said they wanted to do something to show they were there for us, thought we might like some distraction, thought we could use a night out. I sat in my office and cried, in a good way. I've got great friends.

I told Michael, "We're going to Town." He said that was just fine.

We went to Town. Went all out, splurged on really nice dishes, got a rum drink with ginger. We took the bus there, but walked home with dusk setting and colors shot across the sky.

This morning I was almost frantic. 28 more hours, I told myself. 27 more hours. Then I stopped counting and sometime around 24 hours to go I suddenly switched from waiting, waiting, waiting, to ohgodnowI'mgoingtoknow. Because right now there is still some hope that there will be one surgery, and then it'll all be done. But in... 19 hours... In 19 hours I'll know. And there's no going back after that. And everything might change tomorrow.

I can't help but have hope. We've discussed this already, this giddy hope that it'll "only" be surgery to remove a tumor. Because maybe it's only that. Right now, it's 50% only that.

But right now it's 50% bad news also. It's 50% genetic mutation. It's 50% surgeries and possible cancer in my future. Probable cancer without the surgeries.

Right now it's a coin toss. Right now I don't know. But tomorrow...

(Between you and me, I think it would be too much of a coincidence that, given my family's history, that I would have developed a tumor without the gene. Between you and me, those odds seem a bit too high to be realistic. But don't tell me that, because I've still got hope. I'm still hoping for the good outcome. I still got a 50% shot at coincidence.)

Today I solicited concrete tasks for work. I asked my boss, Can I draft the invitation letter? I asked the project manager to let me run the errands. Anything at all-- do you need coffee? My general task at work is to find information that affects the project, and I just couldn't... learn things today. I'd read a paragraph four times before I realized I still didn't know what it said. But concrete tasks. I rocked the concrete tasks. Great draft letter. Errands all completed.

It was threatening to rain when I got home this afternoon so I chose to watch movies over another long bike ride. Just need to make the hours pass now. This is what gets me through today-- distraction, denial, sunny disposition. I smile at everyone. I tell strangers to have a great day.

I watch movies and I make the time pass.

I'll know tomorrow.